1/27/09 - Still Waiting

We are still waiting to hear back the final verdict as to whether Kayleigh is going to need a trach, but all the votes are point in to the direction of "yes" and we are all prepared if that is the case. After learning more about the trach and reading up on all the great information you all have sent us, it comforts me in knowing that this is the very best thing for her. She will not only be able to breath better, but she will be able to focus on other aspects that go along with early childhood development.

We are more than happy to say that the trach will speed up her process of coming home because she would not be able to come home with the ET-tube down her throat. Yes, she still needs to tackle the reflux issue, but they may do either the g-tube/nissen or the jg-tube at the same time as the trach. After that, the doctors need to decide whether or not they want to send her home on the Flolan for her pulmonary hypertension or try and wean her off of it. There is not much else to do from there, but we said that before so pray that nothing pops out of nowhere. We will have in-home care provided for us, which will be the biggest adjustment, but we try to look at the positives and do what is best for Kayleigh. "Hey, at least I get off of night duty for a little bit longer."

Kayleigh seems to amaze us everyday. When we go in to spend time with her at her bedside, we always find ourselves lost in thought. Looking at this blessing from God that has beaten so many odds is such a great feeling. It takes me back to when I would lay next to Aimee and put our little fetal dopplar on her belly so we can listen to Kayleigh's heartbeat. Every night for 10 weeks straight, we prayed to hear the pitter-patter just one more day. We would just lay there and smile at each other with such strength and hope that Kayleigh will make it through this. Look at her now! She makes my heart melt every single time I look at her. I am the proudest Daddy in the whole wide world.

Thank you ALL who have supported us through this.

PS. Don't forget to send in your photos for the baby shower contest. Only 11 days left!!! Submit them at Leeloublogs@aol.com. If you don't know what I am talking about, check out the previous post or go to LeeLou's Baby Shower to get involved.

God Bless,